Tubthumping

Right, once again, a long break. This time,we we dealing with the small matter of open heart surgery for little E. He had a repair of his supravalvular aortic stenosis done in March. Cannot fault the team, our support network, C or indeed E. C was a brave big brother who shed some tears but did everything that was asked. He even accepted that he couldn't give big squeezes so substituted a toy and cuddled E's foot for a month... E himself was discharged 4 days after surgery! ⁴ days after open heart surgery.

The last few months have been tough and exhausting, but E was back up and at em fully for our summer holiday to France. . When we came back, we went to his regular cardiac clinic fully of positive thoughts - he had been fixed! However, what we were told knocked us back. Scar tissue was causing a problem and . A big problem! So climbing back on the merry go round, we waited for MRI appointment and that confirmed the need for something to happen...

So now we wait - not for long - this time its urgent. Not sure what it is yet either astthey will try to balloon the area but if it doesn't work they will go open again. So, blind to what to prepare for awaiting the call to let us know when..

So why the title? The title is back to my music theme. A song by Chumbawumba from the 90s. The important lyric here is "I get knocked down, but I get up again".  We can't falter, E deserves better. We can't stop, C and E need more than that. We have been knocked down and we're getting up and dusting down and moving forward. That might hit some more bumps but there is no option.

That Ironman seems easy now...

So now we wait, not long - this time its urgent - and not sure what for. They will try to balloon the scar tissue,